Japanese Mother’s Society for Allergy Care (JMSAC) are advocates for parents who have children with allergies.  As a result, we are engaged in the following activities:

私たちの活動　その１　　　　　一人ひとりとじっくり向き合う相談活動

#1: Consultation activities to meet each individual patient.

We listen to our clients’ concerns and we have in-depth discussions with them to ensure they fully understand the medical situation, and if necessary, we refer them to medical specialists.

In order to resolve issues that come up during consultations, we bridge the gap between specialists and schools, daycare centers, and kindergartens, specialists and public health centers, specialists and boards of education, etc. We support lectures and workshops where specialists directly visit schools, daycare centers, and boards of education.

#2: Lectures and Roundtable Discussions to Learn Proper Medical Treatment.

We hold lectures and round-table discussions with doctors who are certified by the Japanese Society of Allergology and specialists so that patients can have a clear view of medical care. We also publish a collection of records of lectures and workshops that explain correct medical treatment in easy-to-understand language. Through consultation and other activities, we distribute these materials to those who need them and to public health nurses, nutritionists, and other professionals.

#3: Proposals from the Patient’s Perspective Based on Surveys and Research

We conduct surveys from the perspective of patients on situations surrounding allergy sufferers at schools, daycare centers, and during disasters, and report the results of the surveys and issues that emerge at academic conferences, etc. We also lobby the national and local governments to resolve the issues.

会顧問　西間三馨（にしま・さんけい）先生
国立病院機構福岡病院名誉院長。医学博士。福岡大学医学部客員教授。福岡女学院看護大学名誉教授。九州大学医学部卒業。日本アレルギー学会、日本小児アレルギー学会、日本小児難治喘息・アレルギー疾患学会の理事長など要職を歴任、日本のアレルギー医療、患者を取り巻く社会的な環境の整備に尽力している。

Advisor of JMSAC, Sankei Nishima, MD., Ph.D.

Director Emeritus, National Hospital Organization Fukuoka National Hospital. Visiting Professor, Fukuoka University Faculty of Medicine. Professor Emeritus, Fukuoka Jogakuin College of Nursing. He graduated from Kyushu University School of Medicine and has held important positions such as President of the Japanese Society of Allergology, the Japanese Society of Pediatric Allergy and Clinical Immunology, and the Japanese Society of Pediatric Intractable Asthma and Allergic Diseases.  He has devoted himself to improving the social environment surrounding allergy care and patients in Japan.

■研修会や講演会の講師に招いた主な専門医など　（50音順、敬称略）

飯野（赤澤）晃　青山アレルギークリニック・なすのがはらクリニック理事長

井上　徳浩   　国立病院機構大阪南医療センター小児科医長

今井　孝成   　昭和大学医学部小児科学講座教授

内尾　英一   　福岡大学医学部眼科教授

江藤　隆史　　あたご皮フ科副院長、東京逓信病院皮膚科客員部長、元同病院副院長

海老澤元宏   　国立病院機構相模原病院臨床研究センター長

大矢　幸弘  　国立成育医療研究センター・アレルギーセンター長

勝沼　俊雄  　東京慈恵会医科大学附属 第三病院小児科教授

北沢　　博　  東北医科薬科大学医学部講師・同大学副アレルギーセンター長

栗原　和幸      元神奈川県立こども医療センターアレルギー科部長

佐藤 さくら　  国立病院機構相模原病院臨床研究センター・アレルギー性疾患研究部長

高増　哲也 　 神奈川県立こども医療センター副アレルギーセンター長

谷口　正実　　国立病院機構相模原病院臨床研究センター客員研究部長

中村　陽一　　横浜市立みなと赤十字病院アレルギーセンター長

中山　健夫　　京都大学大学院 医学研究科 社会健康医学系専攻 健康情報学分野 教授

西間　三馨   　国立病院機構福岡病院名誉院長

西本　　創　　さいたま市民医療センター小児科診療部長

長谷川実穂　　小児アレルギーエデュケーター・管理栄養士

林　　典子　　十文字学園女子大学 人間生活学部准教授・管理栄養士

福家　辰樹　　国立成育医療研究センターアレルギーセンター総合アレルギー科診療部長

古川　真弓　　さいわいこどもクリニック、前都立小児総合医療センターアレルギー科

益子　育代　　前都立小児総合医療センターアレルギー科、小児アレルギーエデュケーター

三浦　克志　　宮城県立こども病院アレルギー科科長、東北大学臨床准教授・非常勤講師

森田久美子　　都立小児総合医療センターアレルギー科

渡辺　博子　　国立病院機構神奈川病院小児アレルギー科医長

Collaboration with healthcare professionals (In no particular order)

Akira Iino (Akasawa), MD., Ph.D., Chairperson, Aoyama Allergy Clinic and Nasunogahara Clinic

Norihiro Inoue, MD., Chief, Department of Pediatrics, National Hospital Organization Osaka Minami Medical Center

Takanori Imai, MD., Ph.D., Professor, Department of Pediatrics, Showa University School of Medicine

Eiichi Uchio, MD., Ph.D., Professor, Department of Ophthalmology, Faculty of Medicine, Fukuoka University

Takahumi Eto, MD., Vice President, Atago Skin Clinic, former Vice President of The Tokyo Teishin Hospital, Visiting Chief, Department of Dermatology, The Tokyo Teishin Hospital

Motohiro Ebisawa, MD., Ph.D., Director, Clinical Research Center for Allergy and Rheumatology, National Hospital Organization Sagamihara National Hospital

Yukihiro Oya, MD., Ph.D., Director, Allergy Center, National Center for Child Health and Development

Toshio Katsunuma, MD., Professor, Department of Pediatrics, The Jikei University Daisan Hospital

Hiroshi Kitazawa, MD., Lecturer, Faculty of Medicine, Tohoku Medical and Pharmaceutical University; Deputy Director, Allergy Center, Tohoku Medical and Pharmaceutical University

Kazuyuki Kurihara, MD., Former Director, Department of Allergy, Kanagawa Children’s Medical Center

Sakura Sato, MD., Director, Department of Allergy and Immunology Research, Clinical Research Center for Allergy and Rheumatology, National Hospital Organization Sagamihara National Hospital

Tetsuya Takamasu, MD., Deputy Director of Allergy Center, Kanagawa Children’s Medical Center

Masami Taniguchi, MD., Ph.D., Director of Visiting Scholars Department, Clinical Research Center, National Hospital Organization Sagamihara National Hospital

Yoichi Nakamura, MD., Director, Allergy Center, Yokohama City Minato Red Cross Hospital

Takeo Nakayama, MD., Ph.D., Professor, School of Publich Health, Graduate School of Medicine, Kyoto University

Sankei Nishima, MD., Ph.D., Director Emeritus, National Hospital Organization Fukuoka National Hospital

Hajime Nishimoto, MD., Director, Department of Pediatrics, Saitama Citizens Medical Center

Miho Hasegawa, BS, RDN, Pediatric Allergy Educator

Noriko Hayashi, MS, RDN, Associate Professor, Faculty of Human Life, Jumonji University

Tatsuki Fukuie, MD., Ph.D., Director, Division of General Allergy, Allergy Center, National Center for Child Health and Development

Mayumi Furukawa, MD., Saiwai Children’s Clinic,Formerly, Department of Allergy, Tokyo Metropolitan Children’s Medical Center,

Ikuyo Masuko, ADN, RN, Pediatric Allergy Educator, Formerly, Department of Allergy, Tokyo Metropolitan Children’s General Medical Center

Katsushi Miura, MD., Ph.D., Chief, Department of Allergy, Miyagi Children’s Hospital, Clinical Associate Professor, Part-time Lecturer, Tohoku University

Kumiko Morita, MD., Department of Allergy, Tokyo Metropolitan Children’s Medical Center

Hiroko Watanabe, MD., Chief, Department of Pediatric Allergy, National Hospital Organization Kanagawa National Hospital

●NPO法人アレルギーを考える母の会

（設立の経緯）

NPO法人アレルギーを考える母の会（以下「母の会」と記す）は、代表の次男が適切な医療に巡り合えず重篤な喘息、アトピー性皮膚炎、食物アレルギー、鼻炎、結膜炎などで苦闘した末に、専門医に出会って劇的に健康を回復した経験をもとに、平成11年8月、ともに悩んだお母さんたち10人で発足、平成20年4月、NPO法人化しました。

(Background of Establishment)

JMSAC was established in August 1999 by 10 mothers, who based on their shared understanding of having children with allergies, supported each other.  The idea of the organization was based on the experience of the chairperson’s second son who, after struggling with severe asthma, atopic dermatitis, food allergies, rhinitis, conjunctivitis, and other medical issues, without finding appropriate medical care, found a specialist and dramatically recovered his health. In April 2008, the organization was incorporated as a non-profit organization.

（主な活動）

周囲の理解が得られず、孤立してアレルギーの病気に苦しんでいる患児（者）を守り、健康回復に寄与するために、一人を大切に、適切な医療や学校・園・行政によるサポートへの橋渡しを行う「相談活動」（年間400人、のべ2,000人程度）や、羅針盤となる「治療ガイドライン」をともに学び、自ら治療に取り組むアドヒアランスを育てる「講演会・学習懇談会活動」、アレルギー患者を支える仕組みづくりに向けた「調査・研究、提言活動」を続けています。

(Main Activities)

In order to protect children suffering from allergic diseases who are not well understood by others and are in need of access to high quality health care, we provide “consultation activities” (400 people per year, about 2,000 people in total) to bridge the gap to appropriate medical care and support from schools, preschools, and government agencies, while taking good care of each individual. We also will continue to hold lectures and study groups to learn about “treatment guidelines,” which serve as a guidepost, and to foster adherence to treatment, as well as to conduct surveys, research, and advocacy activities to create a system to support allergy sufferers.

（活動の背景）

喘息やアトピー性皮膚炎、食物アレルギーなどアレルギー疾患については、患児（者）が、住む地域によっては必ずしも適切な医療を受けることができない医療の課題や、学校や保育所などでの患児の支援（食物アレルギーの子どもの給食対応、アトピー性皮膚炎の子のスキンケアなど）に多くの課題があります。

アレルギーの子どもたちを学校や保育所などを含む地域で支えるためには、医師、保健師や栄養士、学校や保育所の教職員などが正しい病態理解に基づく適切な対応・支援について知る必要があり、そのための研修会などの実施が欠かせません。

(Background of Activities)

With regard to allergic diseases such as asthma, atopic dermatitis, and food allergy, there are many medical issues where affected children (persons) are not always able to receive appropriate medical care depending on the area where they live, and support for affected children in schools and daycare centers (school lunch for children with food allergy, skin care for children with atopic dermatitis, etc.). There are many challenges and in order to support allergic children in the community, including schools and daycare centers, it is necessary for doctors, public health nurses, nutritionists, and school and daycare center staff to learn about appropriate responses and support based on a better understanding of the disease.

（患者の視点）

「母の会」は発足以来、毎年のアレルギー学会、小児アレルギー学会、小児科学会、日本小児難治喘息・アレルギー疾患学会などに参加して、「ガイドライン」やＥＢＭ、標準治療などについて理解を深め、多くの専門医と連携してきました。

そのネットワークを生かして、寄せられる個別の相談に対応し、まず患児（者）の健康回復を図り、そうした相談から浮かぶ学校や保育所などでの課題を解決するために、患者と専門医、研修会開催などで自治体と専門医などを結ぶ〝橋渡し〟の活動を続けています。

(Patient’s Perspective)

Since its establishment, JMSAC has participated in annual meetings of the Japanese Society of Allergology, Japan Pediatric Society, and the Japanese Society for Pediatric Intractable Asthma and Allergic Diseases to deepen understanding of “guidelines,” EBM, and standard treatment, and has collaborated with many medical specialists.

We have also been working as a “bridge” between patients and specialists, and between local governments and specialists by holding training sessions and other activities to resolve issues at schools and daycare centers. We continue to work as a “bridge” between patients and specialists, and between local governments and specialists by holding training sessions and other activities.

（行政との連携）

活動の中心である神奈川県では、専門職に対する研修が必要との共通認識のもとに、平成21年度から25年度にかけて、県教育委員会保健体育課、健康増進課、次世代育成課、私学振興課との協働事業で、「母の会」が学校や保育所、学童などの教職員の研修を担いました。平成26年度以降については患者や行政からの要請を受け、専門医をコーディネートする研修会を全国で開催しています。コロナ禍以降は大規模なオンライン研修会を開催し、全国から教職員、保健師などの専門職が参加しています。

(Collaboration with the government)

In Kanagawa Prefecture, the center of our activities, based on the common understanding that training for professionals is necessary, from FY2009 to FY2013, the JMSAC took charge of training for teachers and staff at schools, daycare centers, and school children in a joint project with the Health and Physical Education Division, Health Promotion Division, Next Generation Development Division, and Private School Promotion Division of the prefectural Board of Education. As for fiscal 2014 and onward, training sessions coordinating specialist physicians are held nationwide in response to requests from patients and the government. Since Covid 19, large-scale online training sessions have been held, and teachers, public health nurses, and other professionals from all over the country have participated.

●政府の検討会、ガイドライン委員など

平成24年     内閣府「避難所における良好な生活環境の確保に関する検討会」委員
平成25年     文科省「学校給食における食物アレルギー対応に関する調査研究協力者会議」委員
平成26年     文部科学省「学校給食における食物アレルギー対応マニュアル作成委員会」委員
平成26年     文部科学省「学校事故対応に関する調査研究有識者会議」委員
平成26年      消費者庁「外食等におけるアレルゲン情報の提供の在り方検討会」委員
平成27年       小児アレルギー学会「小児気管支喘息治療・管理ガイドライン2017」作成委員
平成27年      厚生労働省「アレルギー疾患対策推進協議会」委員
平成30年～   日本小児アレルギー学会「小児気管支喘息治療・管理ガイドライン」作成委員
平成30年～   日本小児アレルギー学会「食物アレルギー診療ガイドライン」作成委員
平成30年      学校保健会「学校のアレルギー疾患に対する取り組みガイドライン」改訂委員
平成30年       厚生労働省「免疫アレルギー疾患研究戦略検討会」委員
平成30年～　山梨県「アレルギー疾患対策協議会」委員
令和4年　　川崎市医療政策審議会保健部会臨時委員

Member of government study groups, guidelines, etc.

2012 Member of “Study Group on Ensuring a Good Living Environment in Evacuation Shelters”, Cabinet Office, Government of Japan

2013 Member of the “Investigative Research Collaborators’ Meeting on Food Allergy in School Lunches,” Ministry of Education, Culture, Sports, Science and Technology (MEXT)

2014 Member of the “Committee for the preparation of a manual for food allergy in school lunch”, MEXT

2014 Member of the Expert Committee for Investigation and Research on Response to School Accidents, Ministry of Education, Culture, Sports, Science and Technology

2014 Member of the “Investigative Committee for the Provision of Allergen Information in Food Service, etc.”, Consumer Affairs Agency

2015 Member of the preparation committee for the “Guidelines for the Treatment and Management of Pediatric Bronchial Asthma 2017” of the Japanese Society of Pediatric Allergy, Japan

2015 Member of the “Council for Promotion of Allergy Disease Measures”, Ministry of Health, Labour and Welfare

2018- Member of the preparation committee for “Guidelines for the Treatment and Management of Pediatric Bronchial Asthma”, Japanese Society of Pediatric Allergy.

2018- Member of the preparation committee for the “Food Allergy Treatment Guidelines” of the Japanese Society of Pediatric Allergy

2018 Member of the revision committee for “Guidelines for Efforts against Allergic Diseases in Schools”, School Health Association, Japan.

2018 Committee member of the “Research Strategy Study Committee for Immunological Allergy Diseases”, Ministry of Health, Labour and Welfare, Japan.

2018- Member of “Allergy Disease Countermeasures Council”, Yamanashi Prefecture.

2022 Temporary member of the Health Subcommittee of the Kawasaki City Medical Policy Council

●報道機関との連携

朝日新聞（AERAを含む）、読売新聞、毎日新聞、中日新聞、神奈川新聞、NHK、共同通信、時事通信、TBS、東洋経済新報社等から企画の相談を受け、取材先の専門医、アレルギー疾患に関する情報などを提供しました。

Collaboration with news organizations

We consulted with Asahi Shimbun (including AERA), Yomiuri Shimbun, Mainichi Shimbun, Chunichi Shimbun, Kanagawa Shimbun, NHK, Kyodo News, Jiji Press, TBS, Toyo Keizai Shinpo, etc. for planning, and provided information on allergic diseases and the specialist doctors they interviewed.

●受賞歴

・第24回「神奈川地域社会事業賞」（神奈川新聞社主催、平成24年12月）
・第9回「かながわ子ども・子育て支援大賞」（神奈川県主催、平成27年11月）
・第69回「保健文化賞」（主催：第一生命保険、後援：厚生労働省、朝日新聞厚生文化事業団、NHK厚生文化事業団、平成29年10月）

Awards

The 24th Kanagawa Regional Social Business Award (Kanagawa Shimbun, December 2012)

The 9th Kanagawa Child and Child Rearing Support Award (sponsored by Kanagawa Prefecture, November, 2015)

The 69th “Health Culture Award” (sponsored by Dai-ichi Life Insurance, supported by the Ministry of Health, Labor and Welfare, Asahi Shimbun Health Culture Foundation, NHK Health Culture Foundation, October, 2017)

●ご支援をいただいている企業（令和５年度、順不同）

・グラクソ・スミスクライン株式会社
・鳥居薬品株式会社
・サノフィ株式会社
・ノバルティスファーマ株式会社
・日本ハム中央研究所
・ファイザー株式会社
・マイランEPD合同会社
・マルホ株式会社
・大塚製薬株式会社
・アッヴィ合同会社

Companies that have provided support (FY 2023, in no particular order)

GlaxoSmithKline K.K.
Torii Pharmaceutical Co., Ltd
Sanofi K.K.
Novartis Pharma K.K.
Research & Development Center, NH Foods Ltd
Pfizer Japan Inc.
Mylan EPD G.K.
Maruho Co., Ltd
Otsuka Pharmaceutical Co.,Ltd.
AbbVie GK

●助成をいただいている団体など（令和５年度、順不同）

・独立行政法人福祉医療機構
・（公財）ニッポンハム食の未来財団
・神奈川県社会福祉協議会ともしび基金

Organizations receiving grants (FY2023, in no particular order)

Japan Welfare and Medical Service Organization (JWMO)
Nippon Ham Foundation for the Future of Food
The Kanagawa Prefectural Council of Social Welfare, Tomoshibi Fund

●特定非営利活動法人　アレルギーを考える母の会　　

＜役員＞　〇代表理事　園部まり子　長岡徹
　　　　　〇理　　事　大森幸恵　坂口智恵　荒木洋子
　　　　　〇監　　事　岩田文江

<連絡先>　〒241-0024　横浜市旭区本村町17-1-106　NPO法人アレルギーを考える母の会
                 FAX 045-362-3106

JMSAC Board

Chairperson- Mariko Sonobe
Secretary General- Toru Nagaoka

Directors:
Yukie Omori
Tomoe Sakaguchi
Yoko Araki
Fumie Iwata

Global Communications Manager- Shoko Kurita

＜定款＞　アレルギーを考える母の会定款はこちら

＜決算報告＞　・令和4年度収支決算書はこちら